Epic cycle ride marks 10 year anniversary of Phil Miller’s passing
The daughter of Phil Miller, one of ecdp’s co-founders and subsequent Chief Executive Officer (CEO), has cycled an epic 163 miles to mark the 10 year anniversary of her Dad’s passing and to raise money and awareness for The SMA Trust.
Sian Miller, the eldest of Phil Miller’s five children, cycled with her fiancé Ben Izzard from their home in Eastbourne Harbour to Ipswich Town Football Club (ITFC) over four days, averaging eight hours cycling each day.
Sian and Ben aim to raise £3652 in Phil Miller’s memory, the amount carefully chosen to represent £1 for every day Sian and her family have been without Phil over the past decade. The charity funds research and supports those with Spinal Muscular Atrophy (SMA), a genetic muscle wasting condition.
Leaving their home town on Saturday 8 August, Sian and Ben’s 163 mile route included navigating central London and using the Emirates airlift to cross the River Thames. Their arrived at ITFC was timed to precede the Capital One Club game that night against Stevenage. Phil Miller was a devoted Ipswich Town ‘tractor boy’ fan so the venue was chosen as a fitting tribute.
Donations to date have reached 57% of the target £3652 and it is still possible to donate in the following ways:
Via Text to SMAP88 of £2 or £5 or £10 to 70070
Or via Just Giving Ben Izzard Millers Memory: https://www.justgiving.com/Millers-memory/
Through their fundraising, Sian and Ben hope to contribute to further research into new treatments and potential cures for SMA, via The SMA Trust. SMA remains the single biggest genetic killer of children under two years of age in the UK.
Phil Miller’s vision was to create an organisation that offers a voice for disabled people, who would otherwise not have been heard. Those who had the privilege to know Phil remember what a fighter he was and how he achieved numerous seemingly impossible things. He got married, had five healthy children, became a foster parent, and even adopted his youngest daughter, Chloe. Phil obtained a Master’s Degree, attending university while all his children were still young.
He had many lifelong friends, held regular card games and was infamous for the New Year’s Eve parties held at the Miller household. Phil’s first love of course was his wife and family, but coming an extremely close second was Ipswich Town Football Club! He was a loyal fan and held a season ticket for many years. His family had a brick dedicated there in his memory earlier this year.
Sadly Phil’s life was cut short on 3 March 2005 by Spinal Muscular Atrophy (SMA) at only 48 years of age. Phil’s many remarkable achievements are all the more impressive considering that he was not expected to live beyond three years of age.
For further information please contact:
The SMA Trust (Registered Charity No. 1097765) The SMA Trust 1c Atherstone Barns Atherstone-on-Stour Stratford-upon-Avon Warwickshire CV37 8NE Tel: 01789 801155
Thursday 07 July 2016 is THE BIG HEALTH DAY from 10am to 3pm.
Disability Essex provided advice, support and a place to socialise for disabled people, their families and carers since 1949 but has closed due to financial difficulties.
Dust off your blue suede shoes, brylcreem your quiff and get ready to Party with Elvis on 07 May!